These minutes require correcting and presenting - please visit again soon....
Dr Dawes welcomed all and thanked Kath Jones, Helen Duffy and Kay Stevenson for organising the afternoon. He also thanked Mike Ridley for agreeing to chair the afternoon session.
Gillian Econopouly from ARMA central office gave an overview of ARMA role in highlighting the care of patients with musculoskeletal disease. Questions to Gillian were around how an ARMA network can involve professional from organisation and how to manage any potential conflict of interest. Examples were given where services had been improved for patients through local networks.
Alex Bret then gave a presentation on the importance on gaining patient views and involving them in the design and evaluation of services. Questions to Alex were around the definition of how to achieve ‘patient led services’.
Helen Duffy then gave a presentation around the government’s perspective on dealing with patients with musculoskeletal disease. Issues such as 18 week pathway and choose and book were raised.
The attendees were then divided into ‘patient’ and ‘professional’ groups and were asked to discuss and highlight some of the challenges that we face in delivering services to patients with musculoskeletal disease. This is a summary of the issues raised by each group. Issues that are underlines are those issues which were considered to be a priority.
Feed back from patient group -
Communication
National policy
Local
Developing relationships with commissioners
Giving respect to patients
Will our view be taken seriously
Allocation of drugs, financial constraints
Access to services such as orthotics
Recognising patient preferences for treatment
Access to information
Run by patients
Area for self help groups
Information officer
Web site
Development of an information room
Make research findings easy to understand
Car park facilities
Facilities available for treatment, both in and outside of the NHS
Feedback from professional group -
Informed choice
Positive factors
patient factors
commissioning factors
clinician factors
Negative factors
Political
London
Restrictive system
Fit into a carepathway
Continuing care
Comparative data
Effect on services e.g. acute versus local elective
Care pathways (integrated) across geography
Patient journeys
Why, how who and when
Access, priority
Quality
Evidence based care
Governance
Invest to re shape
Focus on specific journey
Musculoskeletal Frame work
Where is document discussed
Where do patients want treatment (corner shop v supermarket)
Equipment and mirror services
Facility design
Heavy doors, suitable chairs
Implementation of national guidelines e.g. NICE
Changes in practice, techniques, drugs
Bring in other groups
Patients
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- Each group fed back their comments and thoughts. It was felt that using an understandable ‘non jargon’ language was an important issue.
Mike Ridley summarised the afternoon’s works and suggested 5 important next steps for the group to consider
Develop local objectives
Focus for the group, to be discussed at the next meeting
Understandable terminology
Establish a method of working
How do we generate agenda etc?
Statutory Organisation link
Building cases for investment
Identify top priorities
This is the impact we can have as a group, increase our credibility
Develop a PR strategy
How do we highlight the work, members and achievements of the group?
Next meeting - Friday 18th June