tag:blogger.com,1999:blog-24154911410655707822024-03-13T23:57:22.471+00:00Stoke ARMAa website for Haywood Hospital Rheumatology patientstone the blueshawkhttp://www.blogger.com/profile/02468430807403699755noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-2415491141065570782.post-23731301594533533172007-09-30T11:00:00.000+01:002008-12-09T23:53:57.273+00:00<a href="http://2.bp.blogspot.com/_Muw-7YKAz38/RtbBgdN0xgI/AAAAAAAAAMo/De017HriaSM/s1600-h/logo.gif"><img id="BLOGGER_PHOTO_ID_5104479991013623298" style="FLOAT: left; MARGIN: 0px 10px 10px 0px; CURSOR: hand" alt="" src="http://2.bp.blogspot.com/_Muw-7YKAz38/RtbBgdN0xgI/AAAAAAAAAMo/De017HriaSM/s400/logo.gif" border="0" /></a><br /><br /><br /><br /><span style="color:#6666cc;"><span style="font-size:130%;"><strong>ARMA -</strong> the Arthritis and Musculoskeletal Alliance</span></span> - is the UK umbrella association bringing together support groups, professional bodies and research organisations in the field of arthritis and other musculoskeletal conditions.<br /><span style="font-size:130%;color:#6666cc;"><strong>Stoke ARMA</strong></span> brings together patients, patient groups & health professionals to work to improve local musculoskeletal services. We -<br /><ul><li>Monitor local service provision</li><li>Identify, and campaign on local service issues using the ARMA Standards of Care and other policy initiatives</li><li>Provide a shared forum for service users, providers and planners</li></ul><p><strong><span style="color:#006600;">Did you know...?</span></strong></p><ul><li><span style="color:#006600;">At least 8.5 million people in the UK have 'Arthritis' - the term commonly used for musculoskeletal conditions involving bone, joint and connective tissue.</span></li><li><span style="color:#006600;">It is the single largest cause of disability in the UK. There are over 200 types of musculoskeletal condition, from more common conditions such as back pain, to rarer diseases like scleroderma. </span></li><li><span style="color:#006600;">These can affect anyone of any age including children, & cause chronic pain and disability.</span></li></ul>tone the blueshawkhttp://www.blogger.com/profile/02468430807403699755noreply@blogger.comtag:blogger.com,1999:blog-2415491141065570782.post-7941926630328750672007-09-28T20:16:00.000+01:002008-12-09T23:53:57.796+00:00Notes from the ARMA meeting held on 28th September 2007The meeting split into two groups to discuss ideas for a proposed new resource / information centre to be based at the Haywood hospital rheumatology department.<br /><div>Written notes will be posted here soon - in the meantime we have posted photographs of flipcharts arising from the two groups -</div><ul><li>from the group facilitated by Kay (immediately below)</li><br /><li>from the group facilitated by Paul (at bottom of page)</li></ul><em><span style="font-size:85%;">click on each of the pictures to enlarge <a href="http://3.bp.blogspot.com/_Muw-7YKAz38/Rv1XjZiqQvI/AAAAAAAAANA/M4HZleKrqGk/s1600-h/kays_notes.jpg"><img id="BLOGGER_PHOTO_ID_5115341017426051826" style="FLOAT: left; MARGIN: 0px 10px 10px 0px; CURSOR: hand" alt="" src="http://3.bp.blogspot.com/_Muw-7YKAz38/Rv1XjZiqQvI/AAAAAAAAANA/M4HZleKrqGk/s400/kays_notes.jpg" border="0" /></a><br /></span></em><p></p><br /><div><a href="http://2.bp.blogspot.com/_Muw-7YKAz38/Rv1TVJiqQuI/AAAAAAAAAM4/pzc2qsLtTtU/s1600-h/pauls_notes.jpg"><img id="BLOGGER_PHOTO_ID_5115336374566404834" style="FLOAT: left; MARGIN: 0px 10px 10px 0px; CURSOR: hand" alt="" src="http://2.bp.blogspot.com/_Muw-7YKAz38/Rv1TVJiqQuI/AAAAAAAAAM4/pzc2qsLtTtU/s400/pauls_notes.jpg" border="0" /></a><br /></div><br /><div></div>tone the blueshawkhttp://www.blogger.com/profile/02468430807403699755noreply@blogger.comtag:blogger.com,1999:blog-2415491141065570782.post-5906943077764927662007-09-01T11:42:00.000+01:002007-09-26T11:51:13.515+01:00meeting plan - 28th Sept 20071:00 - Lunch<br />1:30 - introductory items -<br /><ul><li>feedback from previous meeting</li><li>Resource centre - progress</li><li>Blood monitor clinics</li><li>website development</li></ul><p>2:15 - Update - Haywood hospital building plans</p><p>2:30 - split into groups to discuss Resource centre / feedback</p><p>4:00 - closing remarks / next meeting</p><p>4:15 - meeting close</p>tone the blueshawkhttp://www.blogger.com/profile/02468430807403699755noreply@blogger.comtag:blogger.com,1999:blog-2415491141065570782.post-8046656728140629212007-06-08T17:00:00.000+01:002007-08-31T09:33:04.928+01:00ARMA Local Network Meeting - 8th June<strong><span style="color:#006600;">These minutes require correcting and presenting - please visit again soon....</span></strong><br /><br />Mike Ridley opened the meeting with an overview of the launch meeting and some feedback from national ARMA.<br />Three mixed groups of patients and professionals then discussed the following topics - Access to services, Resources centres, and Patient preferences.<br />The groups then feedback to the whole meeting, before Helen Duffy sought attendees views on issues affecting patients with musculo-skeletal disease.<br /><br />Summaries of the feedback from the sub-groups -<br /><br />ACCESS TO SERVICES<br /><br />Transport<br /><br />Car/Ambulance: how do I organise this? (feedback within organisations)<br />Bus: Routes / different hospitals / wheelchair access<br />Cost<br />Blue badge access<br />Parking<br /><br />Blood Test Monitoring<br /><br />Location: clinics / GPs<br />Time to suit: a.m. / p.m. / evening / weekend<br />Difficult when regular tests<br />What does Rheumatology department offer initially?<br />Form<br />Speed of blood test<br />DNA rates: how to improve this?: education / convenience/<br />reminder service: phone / text / e-mail<br />Clinics<br /><br />Time to suit<br />Access to urgent review: advice / nurse / GP<br />Via GP or self referral?<br /><br />Injections<br /><br />Who does it? DN / PN / CNS<br />How long can this take?<br /><br />Reception<br /><br />Self check-in / computers<br />Staffing levels<br /><br /><br /><br />Advice Line<br /><br />Access when urgent (Triage system?)<br />What is fair wait? 24 hours?<br />Approx 20 calls per day: who needs doctor’s advice?<br />Access for GPs for advice<br /><br />PALS<br /><br />Who is using it?<br />Is it used in the right way?<br />Sessions at Haywood<br />Advertising<br /><br />Conditions explained<br /><br />Individual notice boards<br />Leaflets<br />Computer access<br />DVD / Video information: How do I get this? Cost? Where?<br /><br />Forward Planning<br /><br />Holidays<br />Future appointments<br />2-way: cancellations / swaps<br />DNA rates<br />Computer system to cope<br />Writing these appointments down / print out<br /><br />Calling in for appointments<br /><br />Name calling<br />“Flashed up” : name? / hospital number? / date of birth?<br />Numbered ticket<br /><br /><br /><br />Clinics<br /><br />Where held<br />Look at statistics: who’s where (postcode analysis)?<br />Ask where people would like to go<br />“Super centres”<br />Knowledge level of staff<br />“Mini team” going out: the expert community group<br /><br />Orthotics<br /><br />Access<br />Time waits<br />Where else can I go?<br />Suitability of what given<br />Choice of styles / colours<br />Systems used<br />Cost<br />Websites<br />RESOURCES & INFORMATION<br /><br />What sort of Resources?<br /><br />Support groups<br />Expert patients<br />Internet: charity / specialist / Haywood Foundation / ARMA web sites.<br />Magazines / Journals<br /><br />What sort of Information?<br /><br />The sort that comes from experience as well as from: CAB / Agencies / Government departments<br />Info on disease / condition / syndrome / drugs<br />FAQs<br />Info on the Department: what it does / who is in it<br />What to do in particular circumstances<br /><br />How do we use information?<br /><br />Decision making on the future<br />Emotional / psychological support<br />Practical support, including equipment<br />Informed choices<br />“Help” telephone and e-mail<br /><br />But there are problems with a resource centre<br /><br />“Over-advising”<br />Accuracy and quality of the information<br />Overwhelming amount of information<br />Cost<br />Manning<br />Confidentiality<br />Training<br />Motivation<br /><br /><br />Notice Boards<br /><br />A useful tool but they must ATTRACT, then INTEREST and then INFORM<br />Should be in a useful position, not just filling an empty wall<br />Should be kept up to date – could it even be dated & changed daily?<br />Ideal for the hospital, patients and groups<br />Could groups have their own display area?<br /><br />Focus For:<br /><br />Comments<br />Petitions<br />Compliments<br />Complaints<br /><br />Shopping List for a Resource Centre<br /><br />Finance from PCT and/or Haywood Foundation<br />Equipment:<br />2 x computers (with ergonomic keyboards)<br />Printer (consumables would be a continuing cost)<br />Dedicated BT line<br />Electricity<br />Cupboards & security<br />IT support<br />Chairs / Desks / Shelving / Racks / Pamphlets<br />People:<br />Coordinator<br />Volunteers<br />Trainers<br /><br />Conclusion<br /><br />Unanimous agreement that a Resource Centre would be valuable<br />Location is a problem, but it is better to start small NOW and to prove the value for something bigger in the future<br /><br />PATIENT PREFERENCES<br /><br />Timing: Shelton Pool<br /><br />Communication: held information<br /><br />Unhappy with current opinion: second opinion / patient toolkit<br /><br />Understanding & Access to information: treatment information at suitable time<br /><br />Access to expertise: PRN<br /><br />Preference to be understood: vis-à-vis access to interpretation; who can articulate the problem; not so much language necessary more intellectual understanding (medical-speak)<br /><br />Mike Ridley concluded by setting some aims for the future -<br /><ul><li>Decide local objectives</li><li>Work on local objectives</li><li>How do we link with the PCT?</li><li>Have we got the right priorities, and how can we influence the right service at the right time?</li><li>Develop a PR strategy</li></ul><br />The date of the next meeting is 28th September.tone the blueshawkhttp://www.blogger.com/profile/02468430807403699755noreply@blogger.comtag:blogger.com,1999:blog-2415491141065570782.post-74469305022848867582007-03-02T17:00:00.000+00:002007-08-31T09:33:38.181+01:00ARMA Local Network Launch Meeting - 2nd March<strong><span style="color:#006600;">These minutes require correcting and presenting - please visit again soon....</span></strong><br /><br />Dr Dawes welcomed all and thanked Kath Jones, Helen Duffy and Kay Stevenson for organising the afternoon. He also thanked Mike Ridley for agreeing to chair the afternoon session.<br /><br />Gillian Econopouly from ARMA central office gave an overview of ARMA role in highlighting the care of patients with musculoskeletal disease. Questions to Gillian were around how an ARMA network can involve professional from organisation and how to manage any potential conflict of interest. Examples were given where services had been improved for patients through local networks.<br /><br />Alex Bret then gave a presentation on the importance on gaining patient views and involving them in the design and evaluation of services. Questions to Alex were around the definition of how to achieve ‘patient led services’.<br /><br />Helen Duffy then gave a presentation around the government’s perspective on dealing with patients with musculoskeletal disease. Issues such as 18 week pathway and choose and book were raised.<br /><br />The attendees were then divided into ‘patient’ and ‘professional’ groups and were asked to discuss and highlight some of the challenges that we face in delivering services to patients with musculoskeletal disease. This is a summary of the issues raised by each group. Issues that are underlines are those issues which were considered to be a priority.<br /><br /><strong>Feed back from patient group -<br /></strong>Communication<br /><br />National policy<br />Local<br /><br />Developing relationships with commissioners<br /><br />Giving respect to patients<br /><br />Will our view be taken seriously<br /><br />Allocation of drugs, financial constraints<br /><br />Access to services such as orthotics<br /><br />Recognising patient preferences for treatment<br /><br />Access to information<br />Run by patients<br />Area for self help groups<br />Information officer<br />Web site<br /><br /><br />Development of an information room<br /><br /><br /><br />Make research findings easy to understand<br /><br />Car park facilities<br /><br />Facilities available for treatment, both in and outside of the NHS<br /><br /><strong>Feedback from professional group -</strong><br />Informed choice<br /><br />Positive factors<br /><br />patient factors<br />commissioning factors<br />clinician factors<br /><br />Negative factors<br /><br />Political<br />London<br />Restrictive system<br /><br />Fit into a carepathway<br /><br />Continuing care<br /><br />Comparative data<br /><br />Effect on services e.g. acute versus local elective<br /><br />Care pathways (integrated) across geography<br /><br />Patient journeys<br />Why, how who and when<br />Access, priority<br />Quality<br />Evidence based care<br />Governance<br />Invest to re shape<br />Focus on specific journey<br /><br />Musculoskeletal Frame work<br /><br />Where is document discussed<br />Where do patients want treatment (corner shop v supermarket)<br />Equipment and mirror services<br /><br />Facility design<br /><br />Heavy doors, suitable chairs<br /><br />Implementation of national guidelines e.g. NICE<br /><br />Changes in practice, techniques, drugs<br /><br />Bring in other groups<br /><br />Patients<br />---------------------------------------------------------------------<br /><br /><ul><li>Each group fed back their comments and thoughts. It was felt that using an understandable ‘non jargon’ language was an important issue.<br /><br />Mike Ridley summarised the afternoon’s works and suggested 5 important next steps for the group to consider<br /><br />Develop local objectives<br /><br />Focus for the group, to be discussed at the next meeting<br />Understandable terminology<br /><br />Establish a method of working<br /><br />How do we generate agenda etc?<br /><br />Statutory Organisation link<br /><br />Building cases for investment<br /><br />Identify top priorities<br /><br />This is the impact we can have as a group, increase our credibility<br /><br />Develop a PR strategy<br />How do we highlight the work, members and achievements of the group?<br /><br />Next meeting - Friday 18th June</li></ul>tone the blueshawkhttp://www.blogger.com/profile/02468430807403699755noreply@blogger.com